The Patient and Family Advisory Board (PFAB) serves as an advisory resource committee in partnership with the St. Luke's Cystic Fibrosis Center of Idaho. Its purpose is to provide a diversity of perspectives in matters relating to the provision of medical care to children and adult patients with cystic fibrosis (CF) in an effort to enhance support, quality, safety, experience of care, and promote the value of clinical research.
PFAB Helps Us Improve Patient Care and Experiences
“You can make a real difference in how care is provided for you or your loved ones at the cystic fibrosis clinic. You can present your ideas and thoughts, feel that you have been heard, and see change in action as they materialize into reality in clinic. It’s a great experience, and get to meet with other people who are in the same situation as you and want to make a difference, too.” – Sonja
- “CF has a tendency to isolate, steal away connections with others like you, be you a person with CF, a parent or guardian, a spouse, a sibling, etc. PFAB can reconnect you and allow you to engage and help others with their battles, big and small. You will have the opportunity to improve clinic experiences by offering suggestions, brainstorming solutions to obstacles and otherwise advocating for patients and caregivers. You will have the ability to frame discussions, learn more about clinic processes and research, and help shape how care should be delivered. You get to contribute to bettering the quality of life for those connected to the CF clinic.” – Andrea